Key Takeaways
- Hayley Killalea was diagnosed with myxoid liposarcoma, a rare soft-tissue tumor, at the age of 24
- She has undergone multiple treatments, including radiation and surgery, and is currently receiving palliative chemotherapy
- Hayley has been open about her journey on social media, sharing her experiences and encouraging others to check for lumps and bumps
- She has continued to live life to the fullest, traveling and spending time with loved ones, despite her diagnosis
- Hayley is currently receiving privately funded chemotherapy, which costs around $8700 per cycle, and is working on a backyard garden project
Introduction to Hayley’s Journey
Hayley Killalea was just 24 years old when she noticed a slight difference in the size of her thighs. After experiencing pins and needles when crossing her legs, she visited her GP, who discovered a 5cm soft-tissue mass in her thigh. Further testing revealed that Hayley had myxoid liposarcoma, a rare and often painless tumor that develops in the fat cells. As Hayley notes, "Sarcomas make up only 1% of adult cancers," and early detection is crucial for survival.
Initial Treatment and Remission
After her diagnosis in April 2021, Hayley underwent 25 rounds of radiation to shrink the tumor, followed by surgery in August 2021 to remove it and save her leg. She was in remission for almost two years, during which time she continued to have regular check-ups. However, in June 2023, she felt a lump on her buttock, which turned out to be metastatic liposarcoma. Hayley then endured 18 rounds of radiation on her buttock before the tumor was removed through surgery. A liver CT scan in November 2023 showed that the cancer had not spread to her liver, but sadly, a month later, another scan revealed that the disease had returned to her liver and lymph nodes.
Travel and Living Life to the Fullest
Despite being told that her cancer was no longer curable, Hayley was determined to make the most of her time. She negotiated with her doctors to delay her palliative chemotherapy, allowing her to travel with loved ones while she still felt well. Hayley’s adventures took her to Singapore, Bali, Paris, Denver, Los Angeles, and Canada, where she attended Coachella and visited her brother. She also spent time at a Swedish-style outdoor day spa in Canada, relaxing and rejuvenating with friends. Hayley’s determination to live life to the fullest is an inspiration to many, and her adventures have been documented on social media, where she has shared her journey with thousands of followers.
Current Treatment and Future Plans
Hayley is currently receiving privately funded chemotherapy, which costs around $8700 per cycle. She has undergone six rounds of chemo and is continuing to receive treatment, with the goal of stabilizing her tumors. Despite the challenges she faces, Hayley remains optimistic and is focused on maintaining a consistent routine, thanks in part to her adorable long-haired miniature dachshund, Maple. Hayley’s latest project is working on a backyard garden, creating a peaceful summer hangout space filled with flowers, herbs, and vegetables. As she celebrates her birthday and looks to the future, Hayley remains grateful for her experiences and the time she has with loved ones.
Raising Awareness and Funding for Sarcoma Research
Hayley’s story highlights the importance of raising awareness about sarcomas, which are often misdiagnosed as benign lumps or sporting injuries in young people. To help fund research, donations can be made to the Sarcoma Foundation NZ at sarcoma.org.nz. Additionally, those who wish to support Hayley’s treatment can search for "Hayley Killalea" at givealittle.co.nz. By sharing her story and encouraging others to check for lumps and bumps, Hayley hopes to make a difference and help others who may be facing similar challenges. As she says, "I’m still bewildered this is my reality, but I’m really grateful for all my experiences with the people I love. I’ve had the best time."
